Support Groups, Links, etc: 114

2006-12-31T12:41:00.000-08:00

76 ON-LINE RESOURCES: Scroll Down

2006-12-30T15:18:00.000-08:00

32 SUPPORT GROUPS IN ARIZONA:

St Joseph's Hospital & Medical Center's

Mother/Daughter MS Support Group
This support group is for mothers with MS and their daughters or for daughters with MS and their mothers. This educational and social program offers group members an opportunity to lend their support, share ideas, and learn from each other as well as invited speakers. The group is for daughters 18 years and older.

Date: The last Saturday of each month

Time: 10:00 am

Location:

Conference Room 2
St. Joseph's Hospital
350 W. Thomas Road
Phoenix, AZ 85013

Contact: Susan Rhodes 480-829-6563

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Multiple Sclerosis Society Self Help Support Groups:

NORTH PHOENIX
Anderson, Karen Ms.
Phone: 602-788-5488
MEET 1ST TUESDAY OF EVERY MONTH AT 6:30 PM MOUNTAIN VIEW COMMUNITY CENTER

SPINGERVILLE AND SURROUNDING AREAS
Bigelow, Clint Mr.
Phone: 928-333-2620
4TH TUESDAY OF THE MONTH 2PM ROUND VALLEY SENIOR CENTER

SUN CITY WEST/SURPRISE
Brodesser, Kaaren Ms.
Phone: 503-981-9216
MEET THE 1ST WEDNESDAY OF THE MONTH AT 1:00 PM; LORD OF LIFE LUTHERAN CHURCH 13724 W MEEKER BLVD SUN CITY WEST--ENTRANCE ON EAST SIDE; CALL FOR MORE INFORMATION

LAKE HAVASU CITY
Butterfield, Jesse
Phone: 928-453-8605
PLEASE CONTACT FOR DATE, TIME AND LOCATION OF GROUP MEETINGS E:MAIL STEALINGHEAVEN@FRONTIERNET.NET

AHWATUKEE
Calacci, Karen S. Mrs.
Email: arizcals@aol.com
Phone: 480-940-8448... ARIZCALS@EARTHLINK.COM; MEET 4TH TUESDAY OF THE MONTH AT 6:30 PM; AHWATUKEE FOOTHILSS MEDICAL CENTER 4545 CHANDLER BLVD PLEASE CALL BEFORE ATTENDING

EAST VALLEY
Phone: 480-890-1488
Meets the 3rd Thursday of the month at 10:00 a.m. at the Grace United Methodist Church. Please call for more information and before attending the group.

COCHISE COUNTY/SIERRA VISTA
Foster, Judie Ms.
Email: judiefos@juno.com
Phone: 360-456-0764 ... PLEASE CONTACT FOR TIME AND LOCATION AS THEY VARY MEET 4TH WED OF THE MONTH

FOUNTAIN HILLS
Phone: 480-837-5676
Meet the third thursday of the month at 10:00 a.m. at the Trinity Lutheran Church (13770 N. Fountain Hills Blvd). May also contact Sara at 480-661-4777.
Please call for additional information or before attending a group meeting.

TUCSON
Hunter, Carol L.520-797-0405
Cindy Lewis 520-887-8905
PLEASE CALL FOR DATE, TIME, LOCATION

GLENDALE
Kearney, Hazel Ms.
Phone: 623-931-1503... MEET THE 3RD TUESDAY OF THE MONTH AT 6:30 PM; GLENDALE PUBLIC LIBRARY; CALL FOR FURTHER INFORMATION

BULLHEAD CITY
Kiesel, Edward Mr.
Phone: 760-955-7518 PLEASE CONTACT FOR DATE, TIME AND LOCATION
Co-leader Dawn Failla 928-758-3678

PAYSON
Lagneaux, Anastacia
Email: lagsns@earthlink.net
Phone: 928-476-4425
MEET THE 3RD TUESDAY OF EVERY MONTH, 2:00 PM; PAYSON LIBRARY; 428 N MCLANE IN PAYSON; PLEASE CALL FOR MEETING DATES AND TIME AS THIS MAY VARY; CO-LEADER MICHELLE 928-472-8059

SUN CITY
Majoros, Beverly Ms.
Phone: 623-876-0588
MEET THE FIRST THURSDAY OF THE MONTH AT 9:30 AM; SUN CITY COMMUNITY CENTER IN THE THUNDERBIRD PLAZA; PLEASE CALL FOR FURTHER INFORMATION- AREA 1

MESA-EAST VALLEY
Manning, Debra Ms.
Phone: 480-890-1488
DMANNING@NETZERO.NET; MEET THE 3RD THURSDAY OF THE MONTH AT 10:00 AM; GRACE UNTIED METHODIST CHURCH 2024 E UNIVERSITY DRIVE

FOUNTAIN HILLS
Markowitz, Marie Ms.
Phone: 480-837-7525
MEET 3RD THURSDAY OF THE MONTH AT 10:00 AM; TRINITY LUTHERAN CHURCH 13770 N. FOUNTAIN HILLS BLVD. CALL FOR FURTHER INFORMATION - AREA 1

NORTH CENTRAL PHOENIX
Kindra Mcfarland
Email: kindramc@qwest.net
Phone: 602-993-0655
KINDRAMC@MSN.COM; MEETINGS HELD: FIRST TUESDAY OF THE MONTH AT 7:00 PM AT THE MOUNTAIN VIEW COMMUNITY CENTER

CENTRAL PHOENIX
Moody, Charles Mr.
Email: cmoody2@mindspring.com
Phone: 602-956-8129
CMOODY5@COX.NET; MEET THE 2ND TUESDAY OF THE MONTH AT 10:00 A.M. FIRST UNION METHODIST 5510 N. CENTRAL AVE

FLAGSTAFF
Morgan, Thais E. Dr.
Phone: 928-214-0037
3RD WEEK OF THE MONTH TIME, DAY AND LOCATION MAY VARY

PAYSON
Phone: 928-476-4425
Meet the 3rd Tuesday of every month at 2:00 p.m. at the Payson Library 428 N. MC Lane Please call for more information.

AHWATUKEE
Posta, Steven J. Mr.
Phone: 480-460-1955
SJPOSTA@AOL.COM; MEET EVERY 4TH THURSDAY OF THE MONTH AT 6:30 PM; AHWATUKEE FOOTHILLS MEDICAL CTR 4545 CHANDLER BLVD PLEASE CALL FOR DATE, TIME

PRESCOTT VALLEY
Phone: 928-775-0453 Comments: Meets the 2nd Saturday of every month at 10a.m. at the Prescott Valley Parks and Rec 7501 E. Civic Circle, #331

GLENDALE/PEORIA
Ramakers, Donna K. Ms.
Email: sjdraz@msn.com
Phone: 623-848-0107
TAMMY FRAZER
623-834-3134
MEET THE 2ND TUESDAY OF THE MONTH AT 6:30 PM; COMMUNITY OF GRACE CHURCH 14120 N 79TH AVE PEORIA

YUMA
Rasch, Alison Ms.
Phone: 617-499-4803
Meeting locations: Life Care Center
2450 S. 19th Ave Yuma, AZ 85364
meet in the classroom
2nd Saturday of the month 11a.m.-1 p.m.
Call for specifics....928-539-7174

FOUNTAIN HILLS
Scheidt, Connie Ms.
Phone: 480-837-5676 Comments: SELF HELP GROUP LEADER FOR ; MEET 3RD THURSDAY OF THE MONTH AT 10:00 AM; TRINITY LUTHERAN CHURCH 13770 N. FOUNTAIN HILLS BLVD. CALL FOR FURTHER INFORMATION

TUCSON-MENS GROUP
Schroff, Lawrence A. Mr.
Phone: 520-885-3181
PLEASE CONTACT FOR TIME, DATE AND LOCATION

SUN CITY GRAND
Phone: 623-374-3251
New group--starting on October 19th--will meet at 5:00p.m. at the Sun City Grand Cimarron Fitness and Spa Center....please call for additional information.

SUN CITY WEST-SURPRISE
Phone: 623-584-1245
Meet first Friday of month from 1:00-3:00 at the lord of life lutheran church (13724 W. Meeker Blvd--Sun city west--entrance on the east side). Please call for additional information or before attending a group meeting.

EAST VALLEY
Tetzner, Judith Ms.
Phone: 480-963-1122
MEET THE 3RD THURSDAY OF THE MONTH AT 10:00 AM GRACE UNITED METHODIST CHURCH 2024 E UNIVERSITY DRIVE, #502

SAFFORD
Thompson, Edie Ms.
Email: moondolly@yahoo.com
Phone: 928-428-7860
MEET THE 1ST WEDNESDAY OF THE MONTH AT 7:00 PM; MT GRAHAM COMMUNITY HOSPITAL IN THE CONFERENCE ROOM; PLEASE CALL FOR FURTHER INFORMATION; MOONDOLLY@YAHOO.COM

SIGNIFICANT OTHER/SPOUSES ONLY
Von Halle, Lois Ms.
Phone: 602-594-2621
MEET THE LAST TUESDAY OF THE MONTH AT 6:30 PM; CALL FOR FURTHER INFORMATION (LOCATION); LVH314@AOL.COM

FOUNTAIN HILLS
Zaluga, Sara Ms.
Phone: 480-661-4777
MEET 3RD THURSDAY OF THE MONTH AT 10:00 AM; TRINITY LUTHERAN CHURCH 13770 N. FOUNTAIN HILLS BLVD. CALL FOR FURTHER INFORMATION

AOL online group:

2006-08-26T09:19:00.001-07:00

MSers United:
"a group for People With MS, multiple sclerosis, supporting each othe"

AOL online group:

2006-08-26T09:19:00.000-07:00

MULTIPLE SCLEROSIS SUCKS:
"Anyone recently Diagnosed or knowing someone with MS"

AOL online group:

2006-08-26T09:17:00.000-07:00

Women with Multiple Sclerosis:
"Talking about the disease,and what can we do to help each other from getting other attacks and the medications we use to help us with MS"

AOL online group:

2006-08-26T09:15:00.000-07:00

Multiple Sclerosis and Nutrition:
"For people who are interested in applying nutrition in their lives with multiple sclerosis. Share ideas, thoughts and experiences"

AOL online group:

2006-08-26T09:13:00.000-07:00

"Multiple Sclerosis Support Group":
"Group for those with or who have a loved one with Multiple Sclerosis can come and voice concerns or ask for advice and help with dealing with this diseas"

AOL online group:

2006-08-26T09:12:00.000-07:00

"Multiple Sclerosis Friends"
"Group monitored by trained MS Advocate. Open and up-beat conversation designed to provide support and education for people who battle Multiple Sclerosis and related issues"

AOL online group:

2006-08-26T09:10:00.000-07:00

Multiple Sclerosis "Mob":
"Open to anyone who wants to discuss their multiple sclerosis experences"

2006-08-26T08:21:00.000-07:00

Newly dx'd Multiple Sclerosis [AOL GROUP]
"This group is a place for people recently diagnosed (or those with a possible diagnosis) with Multiple Sclerosis to share their lives and make new, supportive friends."

UCSF Regional Pediatric Multiple Sclerosis Center

2006-07-17T21:57:00.000-07:00

CLICK HERE
"The only one of its kind on the West Coast, the UCSF Regional Pediatric Multiple Sclerosis Center has been designated by the National Multiple Sclerosis Society as a Pediatric Multiple Sclerosis Center of Excellence for comprehensive care of children and adolescents with multiple sclerosis (MS) and related demyelinating diseases, such as acute demyelinating encephalomyelitis (ADEM) and Devic's disease. We are part of the first national network of six centers sponsored by the National Multiple Sclerosis Society to care for pediatric MS and related diseases. As part of this unique network, we have access to the latest information, research and treatments......"

ONLINE SUPPORT LINKS:

2006-04-02T13:14:00.000-07:00

82 ONLINE RESOURCES & SUPPORT HELP:

SIMPLY PUT THE "http://www." WEB ADDRESS INTO TOUR BROWSER

[WE ARE CURRENTLY CONSTRUCTING THIS LIST]

MS World For persons with Multiple Sclerosis and those who
love them to meet for support and share information. Chats, a library,
tech help, member
e-mail group, message boards, and magazines.
http://www.msworld.org/

CLAMS Computer Literate Advocates for Multiple Sclerosis
http://www.clams.org/

Coping Well - monthly educational teleconference
http://bgmarketinginc.com/copingwell/

Friends with MS - Providing support and information.
http://www.friendswithms.com/

Gardengirl's MS Chat Pals - Chat
http://members.fortunecity.com/eileen63/

International MS Chatter Support Group - Chat and members photos.
http://www.geocities.com/Heartland/Pointe/1417/index.html

Jooly's Joint - Jooly's Joint is a support network and Webpal
service for people living with MS.
http://www.mswebpals.org/

MS 20 something - Invites young and old persons affected by MS to share.
http://groups.yahoo.com/group/ms20something/

MS Central Support Forum - Providing information, support, and friendship.
http://www.mscentralsupport.com/

MS Circle of Friends - For sharing stories of courage
http://mscircleoffriends.us/

MS Friends - Support, information, and encouragment.
http://groups.msn.com/msfriends

MS Means...Talking About It: Support Group - Yahoo! message board.
http://ca.groups.yahoo.com/group/msmeans_talking/

WE ARE THE PEOPLE WITH MS 2
http://groups.msn.com/WEARETHEPEOPLEWITHMS2

MS Sister Act - MSN Group for people with MS and related conditions.
(Registration required.)
http://groups.msn.com/mssisteract

MS Togetherness - Online discussion group.
http://groups.msn.com/mstogetherness

MS Watch - Monitor day-to-day care and communicate with others

MSDiagnosed - Webforum
http://pub11.ezboard.com/bmsdiagnosed

MS'keteers - Self-help site.
http://MultipleSclerosisSupport.org/

Multiple Sclerosis - Organized and maintained by people with MS, this site offers
medical information, and family support
http://www.jsumption.com/

MS Togetherness - Online discussion group.
http://groups.msn.com/mstogetherness

The Musketeers - Support for care partners.
http://www.themusketeers.org/

PeopleWithMS - Chat, Discussion,links, stories and pictures.
http://PeopleWithMS.com/

MS Means...Talking About It:
Support Group_Yahoo! message board. _url: ca.groups.yahoo.com/group/msmeans_talking/

MS People Helping People Inc.
Independent living opportunities. _url:
www.msphp.org/

MS Support and Therapy Group
Located in Farnborough and district UK, this group meets regularly. _url:
www.mssupport.freeserve.co.uk

MS Togetherness
Online discussion group. _url:
groups.msn.com/mstogetherness

MS Watch
Monitor day-to-day care and communicate with others. _url:
www.mswatch.com

MS Watch Canada
Gives information on events and personal stories. _url:
www.mswatch.ca

MS With Attitude Association of Alberta
Facing MS with a positive attitude. _url: www.mswithattitude.ca

Multiple Sclerosis
Organized and maintained by people with multiple sclerosis, this site offers medical information, and family support. _url:
www.jsumption.com/

The Multiple Sclerosis Chat Room
_Helping new MS patients. _url: www.agt.net/public/dgarneau/ms-chat.htm

Multiple Sclerosis Community
_Moderated message boards and chat. _url: www.healingwell.com/community/default.aspx?f=32

Multiple Sclerosis (MS) Support
_Infosci information about Multiple Sclerosis. _url:
www.infosci.org/

Multiple Sclerosis Support Centre
_Chester, United Kingdom. Therapies, physiotherapy, information and support. _url:
www.mssupport.co.uk

Multiplesclerosis.com
_Information and interactive tools to help manage the disease. _url: www.multiplesclerosis.com

The Musketeers
_Support for care partners. _url:
www.themusketeers.org

PeopleWithMS
_Chat, Discussion,links, stories and pictures. _url:
PeopleWithMS.com

The Red Boa Society
_MS chat and bulletin board, wacky support group. _url:
www.rowleycorvette.com/boa/

Rick and Merle.com
_Realtime support validated by scientific peer reviewed research on multiple sclerosis. _url:
www.rickandmerle.com

Self-Help and Positive Enlightenment Group (SHAPE)
_Group in Big Spring, Texas. _url:
www.msshape.com

Yahoo! Clubs: The MS Carousel - A place to share lifes ups and downs
of living with MS
http://groups.yahoo.com/clubs/themscarousel

Yahoo! Clubs: Young MS - A group for those who were attacked
by MS at a younger than normal age.
http://groups.yahoo.com/group/youngms2/

The Multiple Sclerosis Chat Room - Helping new MS patients
http://www.agt.net/public/dgarneau/ms-chat.htm

Multiple Sclerosis Community - Moderated message boards and chat.
http://www.healingwell.com/community/default.aspx?f=32

Race to Erase M.S. - All funds raised from the Race to Erase M.S. event support the The Nancy Davis Foundation for MS. Funding research is the core focus of the organization. _http://www.erasems.org

Boston Cure Project for MS - Organization dedicated to finding a cure for MS by finding the cause. Includes link for interactive site. _http://www.bostoncure.org _ID: 2054 Added: 9-Jul-2002 Update

Computer Literate Advocates for Multiple Sclerosis - Striving to bring those with MS out of isolation and into computer communications for support, companionship and information with others sharing this disease. _http://www.clams.org _ID: 875 Added: 7-Feb-2001 Update

MS First
- The Multiple Sclerosis Research Unit in Bristol General Hospital is furthering information, research, support and training by putting MS first. _http://www.digitalbristol.org/members/msfirst/ _ID: 1451 Added: 30-Dec-2001 Update

MS MOMS Inc.
- Supporting and educating families and women with Multiple Sclerosis, about learning to live with MS during the search for a cure. _http://www.msmoms.com _ID: 431 Added: 29-Nov-2000 Update

Multiple Sclerosis Association of America
- Dedicated to enhancing the quality of life for those affected by multiple sclerosis through patient care services and symptom management research; and to promoting, expanding and encouraging public knowledge, awareness and support as to the needs and day- _http://www.msaa.com _ID: 665 Added: 8-Dec-2000 Update

Multiple Sclerosis Foundation
- Comprehensive web site about MS and MSF, free national services. _http://www.msfocus.org _ID: 2004 Added: 11-Jun-2002 Update

Rotarian Fellowship of MS Awareness
- Rotarians and others create awareness and take action on MS. _http://www.royary-rfmsa.org _ID: 4068 Added: 1-May-2005 Update

Speakeasier - Funding Communication Aids for People with MS
- This organization funds communication aids for peiople with Multiple Sclerosis after assesment by speech language therapists _http://www.speakeasier.org _ID: 1973 Added: 28-May-2002 Update

MS Watch
_Dedicated to helping manage multiple sclerosis. MSWatch is one of the largest Online communities for people with MS and their CarePartners in the US.
Sponsored by Teva Neurosciences._
www.mswatch.com

MS-CAM
_Nonprofit web site of the Rocky Mountain MS Center. Includes reviews on a number of complementary and alternative medicine topics related to MS_
www.ms-cam.org

MS ActiveSource
_Web site for people with MS provided by Biogen, biotechnical company producing Avonex® (Interferon beta-1a), one of the disease-modifying agents for MS_
www.msactivesource.com

Multiple Sclerosis International Federation
_Includes research database, people profiles, and international portal. web site available in English, French, German, and Spanish._
www.msif.org

National Family Caregivers Association
_For those who care for chronically ill, aged, or disabled loved ones_
www.thefamilycaregiver.org

National Organization for Rare Disorders
_Includes three searchable databases and index on rare diseases_
www.rarediseases.org

Center for Medicare Advocacy_Resource for anyone sorting through the complexities of Medicare_
www.medicareadvocacy.org

The Myelin Project
_International organization dedicated to accelerating research on myelin repair_
www.myelin.org

Multiple Sclerosis Society of the United Kingdom
_Includes sections on research, news, living with MS, and for care professionals. Text-only option available_
www.mssociety.org.uk

Mountain MS Center
_web site on alternative and complementary medicine (CAM)_
www.mscenter.org/pages/index2.html

Multiple Sclerosis Society of Canada
_Includes basic facts, news, links to chapters, and information about local fundraising events. Available in French and English_
www.mssociety.ca

Multiple Sclerosis Society of Australia
_Offering online support, specialist services to people with MS, and information services_
www.mssociety.org.au

Multiple Sclerosis Information Gateway
_Visitors can select from one of several languages such as English, Spanish, French, German, and Portuguese_
www.ms-gateway.com

MSWorld
_MSWorld™, the National MS Society's collaborative partner, provides the official chat and message board site for the Society_
www.msworld.org/communications.htm

The Heuga Center
_Colorado-based center established by Jimmie Heuga, diagnosed with MS three years after winning an Olympic medal in alpine skiing. His 5-day CAN DO program provides a comprehensive approach to living with MS_
www.heuga.org

Veterans Affairs MS Centers of Excellence
_Established by the Department of Veterans, these centers are organized around four functional cores: (1) clinical care, (2) research and development, (3) education and training, and (4) informatics and telemedicine_
www.va.gov/ms

The Mayo Clinic
The Mayo Clinic provides a full overview of the scientific side of multiple sclerosis and tips on dealing with physical and emotional aspects of the condition
http://www.mayoclinic.com/invoke.cfm?id=DS00188

Multiple Sclerosis Association of America (MSAA)
The Multiple Sclerosis Association of America (MSAA) offers the latest research news, programs and services, calendar of events, supportive links and resources to promote a greater understanding of multiple sclerosis.
http://www.msaa.com/

Multiple Sclerosis Foundation
The Multiple Sclerosis Foundation provides support and educational programs for those coping with MS including information on events, MS research, online forums and publications.
http://www.msfacts.org/

Multiple Sclerosis International Federation
A plethora of information on MS basics, and a chat support group for patients.
http://www.msif.org/en/

National Institute of Neurological Disorders and Stroke
National Institute of Neurological Disorders and Stroke offers a variety of information about multiple sclerosis that includes information on diagnosis, treatment, clinical trials, research, a glossary of terms and what the future holds for MS.
http://www.ninds.nih.gov/health_and_medical/disorders/multiple_sclerosis.htm

New York Online Access to Health (NOAH)
New York Online Access to Health (NOAH) provides a wealth of multiple sclerosis information including glossaries, information on multiple sclerois
http://www.noah-health.org/en/bjm/ms/index.html

This Is MS
This Is MS offers the latest news in MS, downloads, FAQs, encyclopedia and an open-minded approach to all potentially viable treatments.
http://www.thisisms.com/

International MS Support Foundation
This site offers a support network for people who have multiple sclerosis and their friends and family. This Web site also hosts chat rooms and a list serv, as well as ample information about MS.
http://www.jsumption.com/imssf/

The Well Spouse Foundation
The Well Spouse Foundation gives support to wives, husbands, and partners of the chronically ill and/or disabled through support groups and annual meetings.
http://www.wellspouse.org/

Resources for Caregivers...National Organizations

2005-12-08T11:52:00.000-08:00

American Health Care Association (AHCA)
1201 L St., N.W.
Washington, DC 20005
(202) 842-4444
www.ahca.org

FamilyCare America
Enter your Zip code
1004 N. Thompson St. Suite 205
Richmond, VA 23230
(804) 342-2200
E-mail: info@familycareamerica.com
www.familycareamerica.com

Family Caregiver Alliance
180 Montgomery St. Suite 11001
San Francisco, CA 94104
(415) 434-3388
or 1-800-445-8106
E-mail: info@caregiver.org
www.caregiver.org

National Alliance for Caregiving
4720 Montgomery Lane Fifth Floor
Bethesda, MD 20814
E-mail: info@caregiving.org
www.caregiving.org

National Center for Assisted Living
1201 L Street, NW
Washington, DC 20005
Phone: (202) 842-4444
www.ncal.org

National Family Caregivers Association
10400 Connecticut Ave Suite 500
Kensington, MD 20895-3944
1-800-896-3650
(301) 942-6430
www.nfcacares.org

The Well Spouse Foundation
63 West Main St. Suite H
Freehold, NJ 07728
(732) 577-8899
1-800-838-0879
www.wellspouse.org

AARP
601 E Street NM
Washington, DC 20049
1-888-OUR-AARP
(1-888-687-2277)
AARP.com

Government Resources

Eldercare Locator
Provides help in finding local services for seniors.
1-800-677-1116
www.eldercare.gov

National Family Caregiver Support Program
Administration on Aging
Washington, DC 20201
(202) 619-0724
1-800-677-1116
E-mail: aoainfo@aoa.gov
www.aoa.gov/caregivers

U.S. Department of Housing and Urban Development
451 7th St. SW
Washington, DC 20410
Phone: (202) 708-1112
TTY: (202) 708-1455
www.hud.gov

Centers for Medicare and Medicaid Services
7500 Security Blvd.
Baltimore, MD 21244-1850
1-800-MEDICARE
www.medicare.gov

Health Care Finance Administration
1-877-267-2323
www.hcfa.gov