Support Groups, Links, etc: 114
Dr. Timothy L. Vollmer
Chairman, Division of Barrow Neurology

Director, Barrow NeuroImmunology Program

Barrow Neurological Institute
St. Joseph's Hospital and Medical Center
My Educational Video on MS and MS Trials
Produced by MD Health Channel
Executive Editor.....Anne-Merete Robbs
CEO..............Stan Swartz
FREE e-mail alerts on your MS meds!
We were 1st in AZ to alert MS patients of the Tysabri's deaths..plus they received Dr. Vollmer's Tysabri video below:

Timothy L. Vollmer M.D.
Director, Barrow NeuroImmunology Program
Barrow Neurological Institute
St. Joseph's Hospital and Medical Center


MS treatment news:

"Dr. Vollmer is close to a MS cure..but..he needs you to help by joining a trial!"
Stan Swartz, CEO, The MD Health Channel

"Plus...You'll receive all medication and study based procedures at
NO CHARGE"

.

MS Can Not
Rob You of Joy
"I'm an M.D....my Mom has MS and we have a message for everyone."
- Jennifer Hartmark-Hill MD
Beverly Dean

"I've had MS for 2 years...this is the most important advice you'll ever hear."
"This is how I give myself a painless injection."
Heather Johnson

"A helpful tip for newly diagnosed MS patients."
"Important advice on choosing MS medication "
Joyce Moore

"MY EDUCATIONAL VIDEO ON MS"
For Broadband Users Runtime: 4:17 WMV
 
"THE VOLUNTARY SUSPENSION OF TYSABRI BY BIOGEN IDEC AND ELAN"
For Broadband Users Runtime: 4:17 WMV
 
Timothy L. Vollmer M.D.
Director, Barrow NeuroImmunology Program
Barrow Neurological Institute
St. Joseph's Hospital and Medical Center

"I FEEL GOOD ABOUT FINDING A CURE FOR MS"
Runtime: 54 sec
Runtime: 54 sec
Susan N. Rhodes
Multiple Sclerosis Research
Barrow Neurological Institute

"I'M PRESIDENT OF THE NATIONAL MS SOCIETY..
I WANT TO HELP YOU!"
Chris Uithoven
President
National Multiple Sclerosis Society
Arizona Chapter

"THE MS SOCIETY OFFERS MANY PROGRAMS TO HELP...EVERYTHING FROM PILATES & SUPPORT GROUPS TO HORSEBACK RIDING"
Jerry Turner
Program Director
National Multiple Sclerosis Society
Arizona Chapter

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ONLINE SUPPORT LINKS:



82 ONLINE RESOURCES & SUPPORT HELP:


SIMPLY PUT THE "
http://www." WEB ADDRESS INTO TOUR BROWSER

[WE ARE CURRENTLY CONSTRUCTING THIS LIST]


MS World For persons with Multiple Sclerosis and those who
love them to meet for support and share information. Chats, a library,
tech help, member
e-mail group, message boards, and magazines.
http://www.msworld.org/

CLAMS
Computer Literate Advocates for Multiple Sclerosis
http://www.clams.org/

Coping Well
- monthly educational teleconference
http://bgmarketinginc.com/copingwell/

Friends with MS - Providing support and information.
http://www.friendswithms.com/

Gardengirl's MS Chat Pals - Chat
http://members.fortunecity.com/eileen63/

International MS Chatter Support Group - Chat and members photos.
http://www.geocities.com/Heartland/Pointe/1417/index.html

Jooly's Joint - Jooly's Joint is a support network and Webpal
service for people living with MS.
http://www.mswebpals.org/

MS 20 something - Invites young and old persons affected by MS to share.
http://groups.yahoo.com/group/ms20something/

MS Central Support Forum - Providing information, support, and friendship.
http://www.mscentralsupport.com/

MS Circle of Friends - For sharing stories of courage
http://mscircleoffriends.us/

MS Friends - Support, information, and encouragment.
http://groups.msn.com/msfriends

MS Means...Talking About It: Support Group - Yahoo! message board.
http://ca.groups.yahoo.com/group/msmeans_talking/

WE ARE THE PEOPLE WITH MS 2
http://groups.msn.com/WEARETHEPEOPLEWITHMS2

MS Sister Act - MSN Group for people with MS and related conditions.
(Registration required.)
http://groups.msn.com/mssisteract

MS Togetherness - Online discussion group.
http://groups.msn.com/mstogetherness

MS Watch - Monitor day-to-day care and communicate with others

MSDiagnosed - Webforum
http://pub11.ezboard.com/bmsdiagnosed

MS'keteers - Self-help site.
http://MultipleSclerosisSupport.org/

Multiple Sclerosis - Organized and maintained by people with MS, this site offers
medical information, and family support
http://www.jsumption.com/

MS Togetherness - Online discussion group.
http://groups.msn.com/mstogetherness

The Musketeers - Support for care partners.
http://www.themusketeers.org/

PeopleWithMS - Chat, Discussion,links, stories and pictures.
http://PeopleWithMS.com/

MS Means...Talking About It:
Support Group_Yahoo! message board. _url: ca.groups.yahoo.com/group/msmeans_talking/

MS People Helping People Inc.
Independent living opportunities. _url:
www.msphp.org/

MS Support and Therapy Group
Located in Farnborough and district UK, this group meets regularly. _url:
www.mssupport.freeserve.co.uk

MS Togetherness
Online discussion group. _url:
groups.msn.com/mstogetherness

MS Watch
Monitor day-to-day care and communicate with others. _url:
www.mswatch.com

MS Watch Canada
Gives information on events and personal stories. _url:
www.mswatch.ca

MS With Attitude Association of Alberta
Facing MS with a positive attitude. _url: www.mswithattitude.ca

Multiple Sclerosis
Organized and maintained by people with multiple sclerosis, this site offers medical information, and family support. _url:
www.jsumption.com/

The Multiple Sclerosis Chat Room
_Helping new MS patients. _url: www.agt.net/public/dgarneau/ms-chat.htm

Multiple Sclerosis Community
_Moderated message boards and chat. _url: www.healingwell.com/community/default.aspx?f=32

Multiple Sclerosis (MS) Support
_Infosci information about Multiple Sclerosis. _url:
www.infosci.org/

Multiple Sclerosis Support Centre
_Chester, United Kingdom. Therapies, physiotherapy, information and support. _url:
www.mssupport.co.uk

Multiplesclerosis.com
_Information and interactive tools to help manage the disease. _url: www.multiplesclerosis.com

The Musketeers
_Support for care partners. _url:
www.themusketeers.org

PeopleWithMS
_Chat, Discussion,links, stories and pictures. _url:
PeopleWithMS.com

The Red Boa Society
_MS chat and bulletin board, wacky support group. _url:
www.rowleycorvette.com/boa/

Rick and Merle.com
_Realtime support validated by scientific peer reviewed research on multiple sclerosis. _url:
www.rickandmerle.com

Self-Help and Positive Enlightenment Group (SHAPE)
_Group in Big Spring, Texas. _url:
www.msshape.com

Yahoo! Clubs: The MS Carousel - A place to share lifes ups and downs
of living with MS
http://groups.yahoo.com/clubs/themscarousel

Yahoo! Clubs: Young MS - A group for those who were attacked
by MS at a younger than normal age.
http://groups.yahoo.com/group/youngms2/

The Multiple Sclerosis Chat Room - Helping new MS patients
http://www.agt.net/public/dgarneau/ms-chat.htm

Multiple Sclerosis Community - Moderated message boards and chat.
http://www.healingwell.com/community/default.aspx?f=32

Race to Erase M.S. - All funds raised from the Race to Erase M.S. event support the The Nancy Davis Foundation for MS. Funding research is the core focus of the organization. _http://www.erasems.org

Boston Cure Project for MS - Organization dedicated to finding a cure for MS by finding the cause. Includes link for interactive site. _http://www.bostoncure.org _ID: 2054 Added: 9-Jul-2002 Update

Computer Literate Advocates for Multiple Sclerosis - Striving to bring those with MS out of isolation and into computer communications for support, companionship and information with others sharing this disease. _http://www.clams.org _ID: 875 Added: 7-Feb-2001 Update

MS First
- The Multiple Sclerosis Research Unit in Bristol General Hospital is furthering information, research, support and training by putting MS first. _http://www.digitalbristol.org/members/msfirst/ _ID: 1451 Added: 30-Dec-2001 Update

MS MOMS Inc.
- Supporting and educating families and women with Multiple Sclerosis, about learning to live with MS during the search for a cure. _http://www.msmoms.com _ID: 431 Added: 29-Nov-2000 Update

Multiple Sclerosis Association of America
- Dedicated to enhancing the quality of life for those affected by multiple sclerosis through patient care services and symptom management research; and to promoting, expanding and encouraging public knowledge, awareness and support as to the needs and day- _http://www.msaa.com _ID: 665 Added: 8-Dec-2000 Update

Multiple Sclerosis Foundation
- Comprehensive web site about MS and MSF, free national services. _http://www.msfocus.org _ID: 2004 Added: 11-Jun-2002 Update

Rotarian Fellowship of MS Awareness
- Rotarians and others create awareness and take action on MS. _http://www.royary-rfmsa.org _ID: 4068 Added: 1-May-2005 Update

Speakeasier - Funding Communication Aids for People with MS
- This organization funds communication aids for peiople with Multiple Sclerosis after assesment by speech language therapists _http://www.speakeasier.org _ID: 1973 Added: 28-May-2002 Update

MS Watch
_Dedicated to helping manage multiple sclerosis. MSWatch is one of the largest Online communities for people with MS and their CarePartners in the US.
Sponsored by Teva Neurosciences._
www.mswatch.com

MS-CAM
_Nonprofit web site of the Rocky Mountain MS Center. Includes reviews on a number of complementary and alternative medicine topics related to MS_
www.ms-cam.org

MS ActiveSource
_Web site for people with MS provided by Biogen, biotechnical company producing Avonex® (Interferon beta-1a), one of the disease-modifying agents for MS_
www.msactivesource.com

Multiple Sclerosis International Federation
_Includes research database, people profiles, and international portal. web site available in English, French, German, and Spanish._
www.msif.org

National Family Caregivers Association
_For those who care for chronically ill, aged, or disabled loved ones_
www.thefamilycaregiver.org

National Organization for Rare Disorders
_Includes three searchable databases and index on rare diseases_
www.rarediseases.org

Center for Medicare Advocacy_Resource for anyone sorting through the complexities of Medicare_
www.medicareadvocacy.org

The Myelin Project
_International organization dedicated to accelerating research on myelin repair_
www.myelin.org

Multiple Sclerosis Society of the United Kingdom
_Includes sections on research, news, living with MS, and for care professionals. Text-only option available_
www.mssociety.org.uk

Mountain MS Center
_web site on alternative and complementary medicine (CAM)_
www.mscenter.org/pages/index2.html

Multiple Sclerosis Society of Canada
_Includes basic facts, news, links to chapters, and information about local fundraising events. Available in French and English_
www.mssociety.ca

Multiple Sclerosis Society of Australia
_Offering online support, specialist services to people with MS, and information services_
www.mssociety.org.au

Multiple Sclerosis Information Gateway
_Visitors can select from one of several languages such as English, Spanish, French, German, and Portuguese_
www.ms-gateway.com

MSWorld
_MSWorld™, the National MS Society's collaborative partner, provides the official chat and message board site for the Society_
www.msworld.org/communications.htm

The Heuga Center
_Colorado-based center established by Jimmie Heuga, diagnosed with MS three years after winning an Olympic medal in alpine skiing. His 5-day CAN DO program provides a comprehensive approach to living with MS_
www.heuga.org

Veterans Affairs MS Centers of Excellence
_Established by the Department of Veterans, these centers are organized around four functional cores: (1) clinical care, (2) research and development, (3) education and training, and (4) informatics and telemedicine_
www.va.gov/ms

The Mayo Clinic
The Mayo Clinic provides a full overview of the scientific side of multiple sclerosis and tips on dealing with physical and emotional aspects of the condition
http://www.mayoclinic.com/invoke.cfm?id=DS00188

Multiple Sclerosis Association of America (MSAA)
The Multiple Sclerosis Association of America (MSAA) offers the latest research news, programs and services, calendar of events, supportive links and resources to promote a greater understanding of multiple sclerosis.
http://www.msaa.com/

Multiple Sclerosis Foundation
The Multiple Sclerosis Foundation provides support and educational programs for those coping with MS including information on events, MS research, online forums and publications.
http://www.msfacts.org/

Multiple Sclerosis International Federation
A plethora of information on MS basics, and a chat support group for patients.
http://www.msif.org/en/

National Institute of Neurological Disorders and Stroke
National Institute of Neurological Disorders and Stroke offers a variety of information about multiple sclerosis that includes information on diagnosis, treatment, clinical trials, research, a glossary of terms and what the future holds for MS.
http://www.ninds.nih.gov/health_and_medical/disorders/multiple_sclerosis.htm

New York Online Access to Health (NOAH)
New York Online Access to Health (NOAH) provides a wealth of multiple sclerosis information including glossaries, information on multiple sclerois
http://www.noah-health.org/en/bjm/ms/index.html

This Is MS
This Is MS offers the latest news in MS, downloads, FAQs, encyclopedia and an open-minded approach to all potentially viable treatments.
http://www.thisisms.com/

International MS Support Foundation
This site offers a support network for people who have multiple sclerosis and their friends and family. This Web site also hosts chat rooms and a list serv, as well as ample information about MS.
http://www.jsumption.com/imssf/

The Well Spouse Foundation
The Well Spouse Foundation gives support to wives, husbands, and partners of the chronically ill and/or disabled through support groups and annual meetings.
http://www.wellspouse.org/